So I'm sitting here, while not yet in true worry mode, I am apprehensive. Cayden's surgery for the Velopharyngeal Insuffiency is coming up on February the 15th. The VPI is a congenital abnormality. He's the baby of the family, our wonderfully rotten Sir Brat Of Emoville or Schizophrenic Superhero.
Due to stress when I was pregnant with him, my doctor put me on a medication called vistaril. Well while looking up that medication, I found that it does cause congenital abnormalities. Now I'm scared wondering okay if this is what caused the vpi what do we do. When he goes in for the surgery at the Arkansas Children's Hospital, I will ask his surgeon Dr. Buckmiller about it. She is also going to do genetic testing on him, to see if he has the gene that causes this. If not, then we may never know what caused Cayden to have this.
On other news we are house hunting. We looked at a 4 bedroom 2 bath home yesterday. I can see us making that "home" for us, for a very long time. We decided that Cayden & Rylee will share a room, just a way for us to contain the mess that they inevitably make. Plus they don't fuss near as much with eachother as they do with Tristian & Laci.
I'm missing my parents quite a bit. It's nothing for me to call Mom & Dad and talk to them for atleast 45 minutes to an hour. I'm so excited that they will be coming up here when Cayden has his surgery. I may be 31 but I'm going to need my Mommy that day. I will be picture happy when they are here. Our plans are that Mom will stay with me down at the hospital over night when Cayden does have his surgery. Since we'll have to watch for signs of sleep apnea, looks like her and I will be watching him like a hawk when he comes home too.
It's been rough for Cayden. He had to get his tonsils and adenoids removed on 11/11/10, plus also got his tongue clipped being he was tongue tied. Once I get new tires and the transmission fixed on the durango then we can resume his speech therapy at Theraplay twice a week.
Other news is Rylee is now on depakote for adhd. What a difference a little pill makes for her. Gone are the tantrums from hell, gone are her getting emotional over the slightest thing, I still have my Rylee just a calmer version of her. No she doesn't act like a zombie either, they put her on depakote. She's able to be asleep by a decent time every night, instead of staying up till 3 or 4 am and getting back up for school at 6. So it's been pretty pleasant in Ryville lol.
S.W.V
2 comments:
awww bless lil Cadyens heart. you like me had to take meds during pregnacny now is having to face some difficult situations but you love your babies no matter what you have to face.. lil Cayden has been through alot ..I pray they find out if its genetics or the meds just so ur better prepared on whats on hand.. i just wanna hug lil man ..you know when I was taking meds with Jarett I had to see a fetal specialist . I was asked if i wanted him tested during preg i was like no but now I guess i wanna know what we can do for him so i know how to care for him better so i do understand what ur going through.. I wish we lived closer to one another so i could help you get ur son to therapy... bless ur heart .. im so glad that you found a meds for adhd for Rylee, were trying to find one for brent mason . he started adderal but had to take him off it he acted worse lol.. made him like a space cadet! lol his eyes looked like u see a cat on catip lol... all jittery.. anywho im glad to see everything is working out and i really hope and pray you get your dream home.. and im looking fwd to seeing ur pictures with ur mom and dad i lovre pics they tell a thousand wwords... I may not be there in person but always know im there in heart with ya girl... keep us posted on cayden .. with our kiddos we can help one another our lil journeys... huggs and love to u you guys...............Kris
Thanks Kris, that means a lot. I just worry about Cayden so much & I just want to find out why he has this defect, & why it wasn't caught when he was a baby. He did have severe GERD, but now I wonder if it could have had something to do with his palate issue causing stuff to come out of his nose. I've been researching different causes of the VPI, and trying to prepare myself with whatever it may be. Or it could be that mine and my husband's genes aren't compatible, and we carry the defective gene. I don't know, and the not knowing is bugging me to death.
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